And Now an Ethics Post About ANOTHER Set of Conjoined Twins…

I can’t resist. What were the odds that both famous sets of female conjoined twins would justifiably spark ethics commentary within just three months of each other? And yet here we are…

In January, Ethics Alarms designated Brittany Hansel, the “single” member of the amazing Hansel twins (who, I would argue, are really a two headed woman), an Ethics Hero for the mind-boggling concessions and sacrifices she has had to (and will continue to have to) endure so her dominant sister Abigail can be married. Now comes the news that he oldest living conjoined twins have died at the age of 62.

I’ve been fascinated by the Schappell twins most of my life, since their birth was widely publicized when I was a kid. They were joined at the head and shared 30% of their brains, so obviously separating them was not a realistic possibility. Frankly, I had forgotten about them until this morning: apparently my brain can only handle one set of conjoined twins at a time.

Digression: Is “set” the accepted term? And that question makes me recall a memorable line from “The Simpsons” in a Halloween episode where Bart is revealed to be one half of a good/evil set of conjoined twins. As the Simpsons’ pediatrician, Dr. Hibbard, tells the tale to Lisa (we don’t see much of Dr. Hibbard any more since it was decided that it was racist to have a white actor voice a “black” cartoon character. That, in turn, is one reason I don’t see much of “The Simpsons” any more), the doctor refers to Bart and his brother as “Siamese Twins.” Lisa, pedantic and politically correct as ever, tells him that such individuals prefer the term “conjoined twins,” to which Hibbard replies, “Hillbillies prefer to be called “Sons of the South,” too, but it ain’t going to happen!”

Digression over…back to the late Schappell twins: Their various obituaries are full of head-spinning (something these twins could not do) details with ethics implications:

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Ethics Hero: Brittany Hensel

I wrote about the Hensel twins—that’s Abigail, the bride, above on the left, and Brittany, the maid-of-honor (I’m assuming) on the right—back in 2012 after the conjoined twins agreed to star in a reality show. The post was titled, “Are Freak Shows Unethical? Because They Are Back.” In the post I confessed my sadness that the twins, whose amazing story I had followed since they were todlers, had cashed in and allowed themselves to be exploited:

I first learned about Abigail and Brittany Hensel many years ago in a Life magazine feature about the remarkable  conjoined twins, who to all observers appear to be a two-headed girl. That article talked about how accepting and protective their community was of Abigail and Brittany’s privacy and dignity, and how, except for the fact that they shared a single body, the twins were happy and well-adjusted. Later, when they were teens, there was a documentary about the girls on one of the network news magazines. Again, they seemed smart, lively and and normal by any standard, not just for a “two-headed girl.” They spoke enthusiastically about wanting to have careers and families, and sounded like any other teenager. I found the story both hopeful, inspiring and depressing, especially when Abigail said that she wanted to be a commercial airline pilot and Brittany said that she wanted to be a lawyer. How, exactly, were they going to pull that off?

Now the twins are young women—or a young two-headed woman?—and have apparently made the decision to become professional human oddities. They will be starring this month in a new reality show about their daily life and special problems. We can rationalize the show as an inspiring weekly demonstration of the strength and determination the twins must muster to overcome their disability and to try to lead normal lives, but let’s be honest: this is a modern freak show, no more, no less. As engaging and courageous as Abigail and Brittany are, the primary appeal of the show to the vast majority of viewers will be the fascination of watching a real, live, two-headed girl go through life….Yes, I wish I could have read that they had graduated from law school and started a law firm, or married two wonderful, normal guys who love them and are able to deal with the fact that it is biologically impossible to have sexual relations with only one twin at a time, since they have just one set of genitals between them. It was not going to happen, though, and as the reality of their options dawned on the girls in adulthood, they came to a rational decision: cash in. People are going to gawk at them anyway, they might as well get rich from it if they can….

Now comes the news that one of the twins, Abigail Hensel, got married and has been married for more than two years. Yikes. What’s that like? The HBO series “Tales from the Crypt” had a very funny episode about this situation, but the real life complications are mind-blowing, particular, as I noted in the earlier post, the twins share a single set of sex organs. They have to cooperate to live: one twin controls the left side of what appears to be their single body, the other controls the right side.

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Ethics Quiz: Dr. Phil, Shelley Duvall, And Exploitation

shelley-duvall

A 30-second promotional clip for today’s episode of “Dr. Phil” is disturbing, beyond question. It shows Shelley Duvall, from “The Shining,” “Popeye,” “Nashville” and other well-known films talking to the fake doctor about her mental illness.The syndicated advice show’s promo shows Duvall, almost unrecognizable, talking about how her “Popeye” co-star, the late Robin Williams, is alive and “shape-shifting.” She says she is being threatened by Robin Hood’s Sheriff of Nottingham, and that a “whirring disc” is inside her.

The ad ends with Duvall, 67, telling Phil McGraw, “I’m very sick. I need help.”

She certainly sounded like it, and looked like it too.

Now Dr. Phil is being criticized for exploiting a vulnerable mentally ill woman for her audience drawing powers. The daughter of Stanley Kubrick, who directed Duvall in her most famous role as Jack Nicholson’s terrorized wife in “The Shining,” is leading the charge. Vivian Kubrick called for a boycott of the popular daytime program, tweeting, “You are putting Shelley Duvall ‘on show’ while she is suffering from a pitiable state of ill health. Unquestionably, this is purely a form of lurid and exploitative entertainment — it’s appallingly cruel.”

Your Ethics Alarms Ethics Quiz of the Day:

Is it unethical for “Dr. Phil” to feature Shelley Duvall this way?

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Are “Freak Shows” Unethical? Because They Are Back.

Abigail and Brittany Hensel: Who’s exploiting who?

Circus and carnival sideshows were banned by law and ordinance over half a century ago. Silly me: I remember hearing about that as a child and assuming that it represented human progress, that civilized Americans had decided that it was degrading to both the “human oddities” displaying themselves to gawking onlookers and the gawking onlookers themselves, and that we were better than that. The ethical attitude toward people with deformities, strange maladies and unusual physical characteristics was compassion, acceptance, kindness, and treatment as equals, not voyeuristic ogling. It made sense at the time.

Of course, as a child I had yet to experience the full oppression of political correctness. The sideshows were banned because the people who had no interest in them felt that they could dictate conduct to the people who did, and that it was also somehow virtuous to forbid the human exhibits from making a living—for their own good, of course. It is certainly time to repeal those bans, which were of dubious constitutionality anyway, since the freak shows that were deemed unhealthy and degrading on the carnival circuit are now openly thriving on television, making more money and being seen by more Americans than P.T. Barnum could have imagined in his wildest dreams. The original question remains, however: Are they ethical? Continue reading