Genome Sequences, Consent, and Scientist Ethics

What...you don't trust this guy???

Few things are scarier than when scientists start debating ethics.

A current debate in the scientific community involves whether it is ethical to publish your genome sequence without asking permission from family members. It is increasingly common for people to pay to have their genome scanned for the presence of traits, including genetic diseases. Scientists agree that releasing this information without the permission of the individual whose genes are described would be a clear ethical breach. The controversy involves whether an individual is ethically obligated to get consent from family members before publishing his or her own genome sequence, since to some extent that means publishing theirs as well.

The argument proceeds from the unauthorized release of someone’s genome sequence by a third party to the plight of an identical twin whose sibling wants to publish his own sequence, which, of course, also describes his twin’s.  This is ethically clear too: it would be wrong not to seek permission. But what about the rest of the family? Continue reading

Comment of the Day:”Catawba Valley Community College vs. FIRE, Free Speech and Fairness”

"Being courageous, challenging authority and exercising your right to free speech is no way to go through life, son."

Michael supplies an answer to my question, “What is going on with colleges and universities?” to begin the recent post about yet another example of a college trying to strangle inconvenient free expression on campus. Here is his Comment of the Day on Catawba Valley Community College vs. FIRE, Free Speech and Fairness:

“Colleges used to be run by faculty. Senior faculty members would be promoted to department heads, then deans, then provosts, and finally presidents. Their whole career, they would teach and be in contact with students. The faculty used to have a strong voice, including the ability to remove a sitting president if they felt it was necessary. Continue reading

Catawba Valley Community College vs. FIRE, Free Speech and Fairness

Wait a minute...YES! It's FIRE to the rescue!!

Will someone please  tell me what is going on with colleges and universities lately?

Has there been a collective nervous breakdown among administrators? Is the stress getting to be too much? As the walls close in, with institutions realizing that they are charging far too much for diplomas that neither signify knowledge nor enhance employability, are they abusing power in a futile effort to pretend they are in control of a deteriorating situation beyond their control? I don’t know, but thank heaven for the Foundation For Individual Rights in Education, whose mission of protecting students and academics from abusive restrictions on their rights of free though and expression on university campuses is more crucial than ever.

FIRE’s latest rescue mission was on behalf of Marc Bechtol, a student at Catawba Valley Community College in North Carolina. In June, the College announced that all students would receive a CVCC branded Debit Mastercard according to the institution’s partnership with Higher One, a financial services company. The debit card also serves as the official student ID, so there was no way to opt out of the arrangement. In order to activate his card, Bechtol and other students were required to supply their Social Security numbers, dates of birth, and student numbers. Bechtol smelled a rat, and he has a good nose: this arrangement may be legal, but it is unethical. The school is forcing students to do business with a for-profit entity that will have access to sensitive and personal data. Bechtol objected to CVCC and Higher One  marketing its checking accounts through emails to students, making claims that they would get their tuition refunds and Pell Grants faster if they opened Higher One accounts.  One such email had the subject line, “Want your refund? Activate your CVCC Onecard today!”

After Bechtol activated his own debit card, he said he received a marketing phone call from Orchard Bank, trying to get him to apply for a credit card—smoking gun evidence that his proprietary information, forced out of him by his college, was being sold to marketing firms. Annoyed, Bechtol sharply criticized CVCC’s unethical partnership with Higher One on the school’s Facebook page, writing “Did anyone else get a bunch of credit card spam in their CVCC inbox today? So, did CVCC sell our names to banks, or did Higher One? I think we should register CVCC’s address with every porn site known to man. Anyone know any good viruses to send them? …OK, maybe that would be a slight overreaction.”

One week after posting this, Bechtol was taken out of a class by the CVCC Executive Officer of Student Services and told that he would not be permitted to return. Continue reading

The 9-11 Photo And A Columnist’s Character

One thing I have learned about personal ethics: they are imposible to hide. Ethical individuals eventually show their values in grand style, and those without ethics, or whose ethical values are corroded, frayed and rotting, show their true colors as well. Thus it was no surprise to me when Frank Rich, once one of America’s most unfair drama critics who turned into one of the media’s most vicious opinion columnists, exposed the content of his character in grand style with a New York Time column last month about 9-11. Continue reading

Comment of the Day: “When the Going Gets Tough, the Tough Get Unethical…”

Buck, a professional firefighter, has some wry observations on the Camden County, Georgia plan, discussed in a recent post here, to save money by letting prison inmates fight fires. Here is his Comment of the Day on When the Going Gets Tough, the Tough Get Unethical, Chapter I: Camden County, Georgia has a Terrible Idea to Save Money:

“Oh! This is a wonderful idea, for a variety of reasons:

“1. This puts obviously unemployed workers back to work.

“2. Since public safety personnel are our best and brightest in our community, we would put fewer of them in harm’s way. We have to save their lives to be available for the next parade to represent how trustworthy and respectable they are. If we replace them with convicted felons. and one of them loses their life, there is no loss, truly. True firefighters are much too valuable to risk doing such a dangerous job. On a truly dangerous emergency, the convicts could be sent in to do the dirty work. This would work! Continue reading

Abusing Stutterers: I Am Surprised and Disappointed

A prominent stutterer. She managed to be rather popular in groups despite the problem, or so I hear.

The New York Times related the story of County College of Morris student Philip Garber Jr., who stutters badly. He is also confident and inquiring, and likes to participate in class discussions, though naturally his speech problems make that process challenging for him, his teachers, and his classmates.

One instructor, an adjunct professor named Elizabeth Snyder, simply refused to call on him, and informed him that his stuttering was disruptive, and to keep his questions to himself or write them down. He reported this to the Dean, who told him that he should transfer to another class.

What? Continue reading

“The 48 Laws of Power”: Robert Greene’s Recipe for Power, Greed and Misery

“The 48 Laws of Power” is a 1998 book by Robert Greene, a best-seller, and a re-packaging of ideas from multiple sources, including “The Prince” and “The Art of War.” Those who wonder why it is that certain sub-cultures in the United States—business, Hollywood, the entertainment industry, politics, finance— appear to be incurably cynical, amoral, corrupt and untrustworthy would do well to read it, provided they are able to resist being persuaded by its brutal philosophy.

Greene, who has other similarly-oriented best-selling books on business success, is considered a guru by the music industry, and has been embraced with special enthusiasm by hip-hop moguls. What is remarkable about his 48 laws is how completely they discard all ethical virtues, as if fairness, honesty, integrity, responsibility, respect and trustworthiness were irrelevant to the topic of power. In fact, the five most important laws of power are…

1. You must prove your worthiness to hold power by your manner of acquiring it.

2. Power without competence, wisdom and good will lead to tragedy.

3. Do not use power to restrict the welfare, autonomy, freedom, and pleasure of  others, but to enhance them.

4. Regard power as a means, not an end.

5. When retaining power itself becomes the goal, it is time to surrender it. Continue reading

When the Going Gets Tough, the Tough Get Unethical, Chapter I: Camden County, Georgia has a Terrible Idea to Save Money

Fortunately, ax-murders aren't eligible for firefighting duties....YET!

Camden County officials are considering putting prison inmates to work as firefighters as a cost-cutting measure.

The program would put two inmates in each of three county firehouses. The prisoners (will they wear striped fire-fighter uniforms?)  would respond to all emergencies, including residential fires, alongside the trained firefighters. The special program would be open to convicts charged with non-violent crimes, including drug offenses and robbery.

According to the details of the plan, the inmates would have no guards, but would be monitored by a surveillance system and by the non-criminal firefighters, who will undergo training to guard the inmates. It is estimated that the inmate firefighter program could save the county more than $500,000 a year.

Oh. Well, I guess that makes this irresponsible, reckless, offensive program all right, then! Continue reading

Roger Williams, Consequentialism, and “Born Free”

Roger Williams in his 80's. Take THAT, Drake!

Roger Williams, the pianist whose hit renditions of songs like “Autumn Leaves” and “Born Free” are pop culture generational touchpoints, died this week. One item in his obituary has double ethical significance:

“While majoring in piano at Drake University in Des Moines, he began developing a style that was a fusion of jazz, classical and pop. When a school official overheard him playing the tune “Smoke Gets in Your Eyes,” he was expelled because the school had a “classics-only” policy…”

It is both encouraging and depressing to learn that school administrators were just as doctrinaire, unreasonable, unfair, incompetent, stupid and willing to abuse their power while playing with the lives of young people back in the 1940’s as they are today—encouraging, because that generation seems to have come through it pretty well; depressing, because this field appears to have a flat learning curve.

Mainly, however, Williams’ run-in with music snobs at Drake beautifully illustrates what is wrong with the consequentialist argument that we should assess the ethical nature of an act based on its consequences. Continue reading

Patrick B. Pexton: Worst Ombudsman Ever

Interestingly, you can find Patrick B. Pexton's picture in the dictionary under both "bad ombudsman" and "bad hair."

Well, at least we know that the Washington Post’s new ombudsman, Patrick B. Pexton (who apparently escaped from a Charles Dickens novel) is a dud. That’s one good thing that came out of his column about his employer’s unethical coverage of the “Niggerhead” rock, otherwise known as “Let’s smear that scary Republican, Rick Perry, so he’ll never come close to being President.” Other than that useful but unfortunate fact, however, Pexton’s piece represents the most incompetent and ethically clueless analysis by a media ombudsman that I’ve ever read, and I’ve read a lot of them.

Pexton, who is supposed to present an objective and critical response to ethical issues in Post reporting and editing, instead adopts the stance of its partisan defender. Wrong. That’s not his job. His job is to keep his paper honest and to reinforce stringent journalistic ethical standards. Continue reading